Soliz and Camila
Born 21 months apart, both Soliz and Camila have a rare chromosomal syndrome called Wolf-Hirschhorn Syndrome (4p-). They are both considered to be “deafblind”- being both visually and hearing impaired and require hearing aids and glasses. Both children are prone to seizures.
“Ryan house has become a huge factor for us, someone to count on,” their mom Heather said. “After our first weekend we felt renewed…we felt like we had been on a two week vacation. Ryan House allows us to rest and reconnect with each other. I wish I could convey to other families how important total respite is, not just for me as a mom but for Andre and I as a couple. If we don’t take this break we can’t give our family what they need and deserve.”
“It’s such a precious resource,” dad, Andre, said. “It’s humbling that there is a community that donates its time and money to help us. I’m really grateful.”
Stay in the Loop
Sign up for updates from Ryan House.
Open your heart to help Ryan House thrive.Volunteer