Shortly after learning she was pregnant with triplets, Heather was told her three children, Sebastian, Trinity and Estellah, had only two placentas. At 28 weeks, Estellah passed away in utero and Trinity began having strokes and her kidneys stopped developing. While Sebastian was born healthy at 35 weeks, Trinity was diagnosed with Cerebral Palsy and terminal renal failure with a life expectancy of 15 months.
Trinity was 2 years old when she first went to Ryan House for respite and also used the facility to continue care when the hospital setting was not beneficial to her long term Palliative Care Plan. For 5 years Trinity was able to build relationships with the nurse, volunteers, social workers and directors and at that point her mother knew they would also utilize the End of Life services when the time came.
December 15, 2015 at the age of 7, Trinity passed away at Ryan House with the support of the staff, surrounded by her family and loved ones. “We will forever be grateful for Ryan House for being able to make an unbearable moment into a precious memory. The services provided comfort, support, advocacy and a community that made me stronger and confident in the choices I was able to make for Trinity.”
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